JoJoisms

Dr Me

Written By: JoJoisms - Mar• 23•16

AoEBanner2thumbnail1After moving down to the Indy area, it has become far too long a trip to see my old dr up in NW Indiana.  I don’t miss the 3-4hr wait time, but I do miss having a dr who listens and actually tries to help me using natural remedies.

My new dr apparently only has 10 min on her appointment calendar to deal with patients.  If you happen to have as many symptoms as chronic illness patients have, you will find that 10 minutes isn’t even enough time to tell your dr what those symptoms ARE!  After three appointments, a bit of her attitude, the feeling she thinks I’m making this stuff up and an aversion to anti depressants, I found that we had only covered 1/40th of my issues and I decided to continue to deal with things on my own.

After taking a few weeks to find and compare similar supplements to what I’d been taking before (you know, the stuff that I felt actually worked), I decided to try GNC’s version of the following:

  1. Black Cohosh for my hot flashes
  2. Calcium formula (Calcimate Complete) for my osteoperosis
  3. Ashwaganda and Rhodiola for my adrenal issues and tendency to need mid afternoon naps
  4. Termeric Tea I had to prepare myself for the pain of Fibro, Arthritis and some other nondescript owies
  5. And Luminite, a natual formula of melatonin, magnesium, and other STUFF to help me sleep

It’s been a few weeks and so far, the only stuff that worked tremendously well was the last one for sleep.  I slept only 4-5hrs a night before and after taking it, I was able to sleep 7hrs. Not UNINTERRUPTED, but when you do the addition. Since I don’t have xray vision, I have no idea if the calcium formula is rebuilding my bones, but the other stuff is iffy at best.  I think I feel less pain sometimes, but other times, not so much.  I do feel a bit less sleepy during the day most of the time, but I still need the occasional 10 min power nap.

I’ll give it til the stuff all runs out and see what I want to continue and what I’ll try next.  Til then, I remain your friendly neighborhood peri menopausal, brain-fogged, correspondent with owies and a penchant for more Z’s.

Tips for the Memory Impaired

Written By: JoJoisms - Mar• 16•16

DoohickeyMany chronic illnesses or even other chronic issues can cause brain fog.  If you’re like me, you’ve had a time or two (THOUSAND) when you couldn’t remember what you call something.   

“Hand me that…THING over there.”

“What thing?”

“That BLUE thing.”

“Which blue thing?”

“That light blue thingie that you use when your hair’s wet and you want to…OH, I’LL GET IT!”

If you’ve ever struggled to remember your best friend’s name, what you call pants, or the title of the guy who prescribes your medication, then this post is for you.  Here are some tips for the Memory Impaired.

  1. If you can’t remember your friend’s name, take a page from the Southern Hospitality Committee and call them: Sweetie, Dear, or Honey Lamb.
  2. If you can’t for the life of you think of what you call something you need, use the term: Doohickey, Thing-A-Ma-Jig, Whatchamacallit, Thingie, Thingamabob or Thingamawhatsit.
  3. If you are hard pressed to come up with the term for when 60 seconds, 60 minutes or 24 hours has elapsed, use the term: while or later on. 

I find it helps to find the humor in difficult struggles we go through.  Laughing is so much better than the alternative.  Life with chronic illness can be difficult and stressful, isolating and can even wear you down.  I’ve seen it wear away at people until they question their choices, their lives and even their faith.  But God knows you hurt and He is working in your life to ease the pain and isolation.  I like to think I’m here to help Him with that.  

And we know that for those who love God all things work together for good, for those who are called according to his purpose.” Romans 8:28

Do you have any other tips for the Memory Impaired?  Share your wisdom for the Brain Fogged Masses in a comment here!

What you wouldn’t know if you hadn’t struggled

Written By: JoJoisms - Mar• 09•16

cob web glassesThere are more ways in heaven and earth, Heratio, than are dreamt of in your philosophy…to skin a cat! If you haven’t had the benefit of struggling with health and financial issues for years, you don’t know what you’re missing!  OK, you’re probably happy about that, but really, you’re missing out on some important lessons I’ve learned along the way.  These are things I would never have figured out on my own had I not had a burning desire to continue to do things like…eat and put on my pants (be they one leg at a time or whichever way would give me the end result I needed to go out in public and not be arrested).  It’s okay though.  You don’t have to pray for trials in order to learn these valuable life lessons.  Just twist my right arm a bit and I’ll cry Uncle and share them with you.  (Now that I think of it, please keep the twisting to a minimum. My right arm is still a bit stiff and painful from my seven month bout with Frozen Shoulder. Thanks.)

Let me first preface this blog post by giving you a tip about how to come up with your own “creative” solutions to whatever daily challenges you may have because nobody goes through this life unscathed.  (Actually, I’ve never heard of anyone being scathed.)  To get your creative juices flowing, you first have to start by looking at the problem with rose-colored, webbed glasses.  If you look at your challenges from the perspective you had BEFORE the challenge (the webbing that represents your problems),  you will never see the problem from the perspective you need.  You’ll never see how to fix something until you’ve lived with it broken.  Next, you’ll need to make those glasses rosey.  You’ll need to be able to look for a positive way out.  Lastly, you’ll need to squint your eyes and cock your head sideways.  Don’t worry about that guy across the street; he already thought you were weird because you were a bit overwhelmed this morning when you got dressed and you’re shoes don’t match.

If that doesn’t help, here are some of the things I have figured out along the way.  I pray they ignite a spark of creativity.  By the way, just so you know, creative juices are a result of overwhelm. No, really!  When you are overwhelmed by trials and struggles, your mind turns to mush. From there it’s just a hop, skip and a jump to a liquid state!

What I learned from struggles:

1. To be resourceful: Can’t use your right arm when right handed? Learn to be left handed.  There are more ways to put your bra on than front to back!  Put it around you backwards, clasp it in the front, then turn it around and slide your arms in.  VOILA!

purple cast

2. To be inventive: Can’t afford to buy food this week?  Create a new dish from what’s in your kitchen.  We’ve had pot luck tacos from left over chicken, rice, veggies and a splash of salsa.  Can’t eat certain foods? Create your own dishes!  I can’t eat gluten or dairy so I eat a burger and hold it between two large spinach leaves.  Can’t afford to buy clothes? Create your own style from what’s in your closet: dye them, or cut them up and sew them into something else.  I love purple. I’ve taken old clothes, dyed them purple, cut them up and sewed them together differently in order to make something new.  An old pink shirt someone gave me that was too big became a purple dress that I wore over stretch pants to hide my hind quarters.  I just dyed it purple, took in the sides and shortened the sleeves!

3. To be patient:  Can’t do something you really want this year?  Plan for next year! Most things I couldn’t do or have at one time were available to me later on.  Sometimes they were even better later.  I couldn’t seem to get pregnant after having my daughter in 1990. I thought I was pregnant several times and I had one confirmed miscarriage.  When I was able to have another child, I can tell you he was worth the wait.  He’s incredibly kind, supportive, funny and he loves God.  I couldn’t afford to fly to my parent’s house for our annual Thanksgiving family get together last year, but I can plan to go this year and make it even more special.

4. To be practical: Can’t get something done?  Did you really need to do it anyway? Haven’t you ever had a hard time trying to get something done only to realize that you really didn’t want to do it anyway and were relieved to be able to quit trying?  I once had a deadline for something business related, but I just was stymied at every turn until one day I realized I never really wanted to do it anyway.  It felt good getting that anvil off the ledge above my head.

5. To be grateful: Can’t do X?  Be glad you can still do Y! Look for the blessing. THIS is hard to do sometimes.  It can be difficult to try to find the blessings in some of the trials we go through, but it helps to look.  My husband had been out of work for almost a year. While it’s been scary and frustrating to deal with trying to earn money from home and the disappointments of jobs that have passed him by, it’s a blessing that he’d been home.  It’s hard for me to drive with my left hand still aching from the car accident two yrs ago and my right shoulder which necessitated the physical therapy appointments in the first place.  PLUS as I’m writing this, I’m recovering from Snow Scare.  We just had a close encounter of the 18 wheeler kind!  Yes, driving home from PT and going a mere 1mph to a stop light, we almost slid into an 18 wheeler who was stopped ahead of us.  The slush underneath our tires during the snow storm had tried to persuade our car to continue where no man has been before.  Through my dh’s skill and God’s grace, we stopped just shy of fitting our SUV neatly underneath.  If I had been driving, I’m not sure that would have ended as well.

6. To make lemon-aid out of sour grapes: Can’t be at the family’s Thanksgiving event?  SKYPE!  It’s almost like you’re there!

Big glassesLife is difficult.  Things don’t always go as planned and they rarely go by the book.  Be flexible. Think outside the box and look at life through those rose-colored, webbed glasses until things become clear.  Oh, and don’t forget to cock your head to the side.  In fact, do that now.  No really.  Do it now.  What do you see? Is that a way out you never noticed?  A work around?  An alternative?  A hidden blessing?  A better idea?  If you look at things differently long and hard enough, you just might find your answers hidden there near the three week old left over veggies sprouting mold behind the milk in the fridge.

I’ve been looking for answers for over 35 yrs. I haven’t always found them, but I have found them more often than I thought I would.  Sometimes it’s harder to see them than others, but I keep looking.  What about you?

When Dreams Collide

Written By: JoJoisms - Mar• 02•16

dreamWe interrupt this chronic illness blog for a word from our sponsor: humor.  Something happened recently that I thought you all would get a kick out of because it’s both weird and funny.

So the other night I dreamed that my dh, children and I drove to some huge mall I didn’t recognize in an area I didn’t know.  Now that’s not saying much as we’ve only lived here a few months and it takes me 900 years to get to know an area.  I get lost backing out of my own driveway, forget my own name and have a hard time recognizing my living room.  But I digress…

So in the dream, I got separated from my family and ended up lost in the huge mall by myself unable to call my dh because my cell phone (a 1995 vintage phone) didn’t work.  It got dark, my dh never came back for me and the mall closed with me still in it.  After waking up, I was still kind of upset with my dh for leaving me in Dream Mall the entire night.

That morning, I told my tale of mall woe to my dh who said he’d had an odd dream as well. In his dream, he and our two young daughters (we actually have one married dd and a teenage son) were trying to get into an outdoor Walmart to buy some food. The girls were hungry because I didn’t feed them that day.  He had to enter some kind of key coded gate, but upon entering, he was unable to get to the check out with his food.  He told me that upon waking up, he was still upset with me for not feeding our two young daughters all day.

I informed him that I couldn’t have fed them because he LEFT ME AT THE MALL!

I now return you to your regularly scheduled reality.  Have you ever had a dream that seemed to go hand in hand with your spouse’s dream?  Do tell!

Doctor Protocol 3.0

Written By: JoJoisms - Feb• 24•16

Pain1501Apparently, there is a new Dr protocol for appointments I was somehow blissfully unaware of until recently.  As this is the 21st Century, I’ll put it in terms our kids would understand.  It’s Doctor Protocol 3.0.  It’s the operating system for doctors of the information age…or should I say non information age.  It’s where you make an appointment because you have several chronic illness issues that have gone untreated for a month or six or 12 and they make you an appointment. BUT when you come in, you are told the doctor can only address one concern per visit.

I say 3.0 because there was an updated protocol many years back where doctors were not inclined to treat you as a whole person but as a collection of symptoms they addressed with whatever conventional medical training de jour teaches even if they know darn good and well it won’t work for you.  So this is the new and improved Doctor Protocol 3.0.

I shared my new found disgruntledness with several peri people on Facebook a few weeks ago and was regaled with some important information I was apparently missing pre enlightenment.  I now enlighten you in case you had any delusions of grandeur.

I went to my GP a few months ago mainly, but not entirely, due to frozen shoulder. It had been extremely painful for six months and I hadn’t had insurance til then. Lost it a yr ago when my dh lost his job. She would only address that one issue saying she didn’t have time to blah blah blah….  After some phys therapy, it felt much better, but I still had several chronic issues including a ton of Peri issues to solve.  As I was busy running three business trying to make ends meet in the absence of a salaried income, I didn’t bother to make another appointment until…

Then the other night I was dizzy so I made an appt. “I know you want to talk about all your issues, but I don’t have time right now”. So I had a urine test which revealed a UTI.  She gave me a prescription for that and asked me to make a “long appt” for two weeks hence to follow up and discuss more of my issues.  I’m 53.  Been to a lot of dr’s as I have always had a lot of chronic issues. NEVER been told this. So I asked my FB group if this was a new trend so dr’s can bill ins co for more visits? 

I was told that insurance companies only allow drs to bill for 12 minutes per patient.  UM!  What if it takes me 12 minutes just to list them off?  UH…what if you prescribe something for me that is counter intuitive due to another issue I have that you would finally address at visit #6?  And do I really have to wait six visits and weeks or months to begin to address chronic pain, fatigue and stuff?!  

So we’ve gone from a dr/patient *relationship* to a dr/patient sound byte exchange.  The Information Age has now tarnished our relationships so much that the resulting conversation is spoken in shorthand and bullet points articulated in rushed, hushed tones so as not to antagonize the Insurance Gods and awaken the Time Nazis.  

What’s your experience?

What’s the one thing you’d like people to know?

Written By: JoJoisms - Feb• 16•16

CrazyEach month here at JoJoisms, is going to be question time. Time for JoJo to sit back and read what you all have to say!  This is also a time for you all to share your heart and for me to understand more of what my readership needs from me here at JoJoisms.  So…

What is the one thing you’d like people to know about your chronic illness?  Please share your thoughts in the comments as detailed as you would like to get…or not. 😀  Feel free to rant, but please don’t rave. LOL  I know how frustrating chronic illness/pain can be so feel free to share your heart as long as you refrain from language that isn’t Family Friendly, please.  

I’m sure there are many others who share your concerns and frustrations. Let’s see if we can share with each other, support one another and learn from each of our stories so we don’t look like Screaming Sheila over there to the left.  LOL  If we can verbalize what we’d like, sometimes with help and God’s grace we can find a way to get what we need.  

What’s the one thing you’d like people to know about your chronic illness?  Go!

Two are better than one; because they have a good reward for their labour.  For if they fall, the one will lift up his fellow: but woe to him that is alone when he falleth; for he hath not another to help him up.” -Ecclesiastes 4:9-10 KJV 

Valentine’s Special Offer

Written By: JoJoisms - Feb• 10•16

This week I’d like to share something special with you. It’s a bit off topic, but important.  I usually don’t post my business stuff on here, but this is the most important topic I could share the week of Valentine’s Day.  If’ you’ve followed me for a while here at JoJoisms, you know that one of my passions is the Lord and another is effectively communicating what the Lord has for you to share.  Well, this is a very special package we’ve never offered before and, quite frankly, I’m not sure if we will again.  So…without further pomp and circumstance…just a short message and link to give you a voice to share the Word of God and your mission in a godly way.

 

Val Special 2016My company, Art of Eloquence, is offering an incredible Valentine’s Day Package that is perfect for families who’d like to improve their communication skills in order to share the the Gospel, deepen their faith and/or learn how to communicate difficult things in love and grace.

It’s an incredible package of two digital study materials, a bonus and a store-wide gift certificate!  You can check it out by clicking this link, but hurry!  It’s only good through Feb 15th!

Joy isn’t happiness…or is it?

Written By: JoJoisms - Feb• 03•16

dumb questionIn the MANY years I’ve been struggling with chronic illness and other chronic issues, I can’t count the number of times Christians have told me “this too shall pass.”  Unfortunately, it may not pass in my lifetime.  I’ve also been told that though there is weeping in the night that joy comes in the morning.  Unfortunately, that morning is a long time in coming.  These things speak of what is coming for us after this life: the joy we will feel when we finally see heaven, our true home.  It’s not meant that we will feel better when we wake up or that our troubles will be gone. Further, they usually cite Job and how God allowed him to be tested and then restored Job to greater than he had prior.  However, God doesn’t promise us that He will restore us or take away our pain in this lifetime. He never took away Paul’s thorn in his side.   Job is a different lesson for us. It’s a lesson in knowing God is there and being faithful no matter what is going on in our lives.  Paul is a lesson to us in living for and being faithful to Him despite the troubles we encounter in this world. They are lessons of the agape love of God and our heavenly home after this lifetime, but not necessarily of a charmed life here on earth.

So I started looking at another saying I’ve heard over the years that Joy is different from happiness.  We might not be happy about our circumstances, but we are to have joy.  Makes a kind of sense, doesnt’ it?  You may not be happy about being in pain every day for 35 yrs, that you’ve been in financial upheaval for 10 yrs, or that you no longer have the use of a part of  your body or can no longer see a loved one.  However, you can have joy in the Lord knowing that after you have run the race, fought the good fight, been faithful to God in this life, you will have joy in heaven!

Does that mean we don’t get sad, upset, depressed, angry?  I don’t think so.  Does it mean we always feel happy or joyous?  I doubt it.  Does any human being feel joy at the loss of life, quality of life or about having to struggle to survive?  No!  But do we need to stay that way?  No we don’t!  How we get ourselves out of a funk due to trials is a topic I’m going to cover at a later date as I’m still working through it myself.  I stay busy, concentrate on making people laugh and keeping my sanity.

But this got me thinking about what joy and happy really mean.  So I googled and found this article!  Was not at all what I was expecting and it also doesn’t deal with how we struggle with chronic issues or get through them, but I thought it was important enough to share with you.  Here’s an excerpt from the article to give you an idea of why I was shocked.

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An ungrounded, dangerous separation of joy from happiness has infiltrated the Christian community. The following is typical of the artificial distinctions made by modern Christians:

Joy is something entirely different from happiness. Joy, in the Biblical context, is not an emotion. . . . There is a big difference between joy and happiness. Happiness is an emotion and temporary; joy is an attitude of the heart.

Judging from such articles (and there are hundreds more out there), you’d think the distinction between joy and happiness is biblical. It’s not.

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For now, let me say that I understand if you feel sad, angry, overwhelmed, frustrated, in pain, etc.  I feel it too, but by sharing our struggles, looking for answers, and trying to find the bright side of things we can use the struggles and trials we go through to bring light into a dark world.  More on that later too.

While we may not be able to feel joy or happiness (or even that God is with us) during times of extreme pain or stress or sadness, we can hold onto the promise that God IS with us and loves us and has a plan for our lives despite what we may be going through.  We have a purpose and we can strive to fulfill it with help from each other.  Amen?

 

I have chronic illness and I write for you!

Written By: JoJoisms - Jan• 27•16

SadI wrote this almost a year ago, but since this is the beginning of a new year, I thought I’d share it again to let you all know why I write this blog.  I pray it’s a blessing to you. Please share it on social media and with others who have chronic issues they struggle with.  

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I write for you.  I write for all those with chronic illness who aren’t where I am or may never be.  I write for all those who can’t find the words to express how they feel to family, friends or doctors except with soft whimpers and cries.

I write for all who know what it’s like to be too tired to get up off the couch to go to bed.  I write for all those who are in so much pain each day they can hardly stand it.  I write for all those who feel alone or that nobody understands.  I write for all those who feel as if God has abandoned them.  I write for all those who don’t know how to answer the question, “how are you today?”

I write for all those who feel obligated to push themselves beyond what they can do because they don’t want to be seen as a wimp.  I write for all those who feel they have to justify their pain or fatigue.  I write for all those who are told they’re just complaining. I write for all those who have been told they just don’t want to get well.  I write for all those who are accused of not being a good enough Christian because they are still struggling.

I write for all of you who wish your pain would show on the outside so others would at least have some compassion.  I write for all of you who feel that without some heavenly inner strength, your disease would consume you.  And I write for all of you who don’t know that strength yet.

I have chronic illness and I write for you.

It is of the Lord‘s mercies that we are not consumed, because his compassions fail not. They are new every morning: great is thy faithfulness.” -Lamentations 3:22-23

JoJoisms about illness

Written By: JoJoisms - Jan• 20•16

I’ve written many JoJoisms and created many Visual JoJoisms that relate to illness over the years. I thought I’d start the year off by sharing a few of them here this week.  Enjoy and please comment below with your thoughts.

fred

 

 

 

 

 

 

 

 

 

 

 

 

 

Walking with God

 

 

 

 

 

 

 

 

 

 

 

 

 

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Insomnia3

 

Silent Pain